I would have so many questions to ask you if we were sitting down together. But I am comfortable recommending keeping the arm slightly elevated as tolerated (maybe just shoulder height/slightly lower at first) and gently squeezing a stress ball anytime you are sitting down. Maybe for a little while before going to sleep. Keep it low intensity and slow, one squeeze every 10 seconds at first. Progress as tolerated. Stop if you feel anything doesn’t seem right or any pain. Build up how long you are doing this over time. Start with maybe 2 to 5 minutes a day. Add a minute or another round of squeezes every few days. If it seems to be helping, resist the urge to amp it up too quickly.
I would still recommend telling your surgeon/doctor that you are going to try this. Just in case they have an objection.
Hello Eva Anderson,
You could also find a homeopath and/or naturopathic doctor to add to your sources; there are remedies for edema.
Please remember to listen to your body, do what you can without discomfort. If it causes pain, do something else. You will heal, it just takes time. I know it must be frustrating; but, slow and steady truly does win the race. Hang in there, look at all you have overcome.
Natalie aka NAPS 2 B Fit.
my suggestions is that you check out the MELT Method techniques. It is a self-treatment technique for the connective tissue using balls for hands and feet (may help with the lymphedema) and a soft foam roller. Beyond the connective tissue, it has core techniques and can help with neck, low back, hip and shoulder issues.
Maybe you are lucky enough to have an instructor near you. There is also a book and DVD, and some instructors offer training via Skype.